A Mother’s Journey
Megan is the mother of a child with a rare genetic syndrome. Here, she shares her story of overcoming many obstacles – from high fees to puzzling policies and procedures – to get copies of her daughter’s medical records so…
Troubleshooting Tracers’ Stories
We continue our Tracer Series by sharing common roadblocks Tracers have faced when they tried to get and use their health data.
A Tale of Two Tracers
This week, we’re kicking off our series of Tracer stories by sharing stories from two patients who requested their health data and reported back to us about their experiences. Sarah’s Story “I completed a long form to request data from…
Getting Up to Speed with GetMyHealthData
Happy 90 Days Post-Data Independence Day!! Ninety-three days to be precise. #Tracers: Since the GetMyHealthData campaign launched on July 4th, volunteers have been requesting their health data and reporting back to us on their experience. Their reports illuminate a pathway…
Got A Health Data Story to Tell?
Get down with GetMyHealthData during National Health IT week! People are tracing. We’ve been learning. Now, we’re releasing some early findings and new resources during National Health IT Week, October 5-9! Check out what we’re doing below and join the…