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A Mother’s Journey

  • February 18, 2016

Megan is the mother of a child with a rare genetic syndrome. Here, she shares her story of overcoming many obstacles – from high fees to puzzling policies and procedures – to get copies of her daughter’s medical records so…

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A Tale of Two Tracers

  • February 12, 2016

This week, we’re kicking off our series of Tracer stories by sharing stories from two patients who requested their health data and reported back to us about their experiences. Sarah’s Story “I completed a long form to request data from…

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Got A Health Data Story to Tell?

  • September 25, 2015

Get down with GetMyHealthData during National Health IT week! People are tracing.  We’ve been learning.  Now, we’re releasing some early findings and new resources during National Health IT  Week, October 5-9! Check out what we’re doing below and join the…

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