It makes sense to me as a patient to have my data and use it to empower myself to know my body through the data.
It was complete, but displayed as fragmented data, very hard to read even for an experienced clinician.
[My providers] were awesome but quite handicapped in understanding my history due to the lack of data.
I do have access to after-visit summaries, but…having the doctor's notes would help me remember details of our discussion.
[My data] is a 47 page PDF of many things and of varying sizes and resolutions - Incomplete at best.