In 2015, the National Partnership for Women & Families launched the GetMyHealthData initiative to see what happens in the real world when people request digital copies of their health data. We wanted to understand how to make it easier for patients to access, use and share their electronic health information to support them in their health and wellness goals. As we collected stories from patients and caregivers – volunteer “Tracers” – we found numerous challenges facing both patients and providers when it comes to information sharing.
For health care providers, patient requests for health information can be confusing or daunting, raising questions about HIPAA compliance, technical capabilities and resources. Now, thanks to generous funding from the New York State Health Foundation, we will be supporting New York hospitals and medical practices to test new approaches to making health information more accessible and actionable for patients and families.
These providers will receive tailored technical assistance from the National Partnership to become “Data Exemplars” – institutions that make information sharing easy, meaningful and routine. We will help turn their lessons learned into actionable tools for other health care providers in New York and across the country. We’re excited to identify and disseminate creative strategies for health information sharing that empower consumers and family caregivers to be partners in their own health and health care.
If you’re a health care provider in New York and want to learn more, email Erin Mackay at [email protected]. If you’re not a New Yorker, we’d still love to hear from you – share your story at GetMyHealthData.org/share.