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Art by Regina Holliday

Empower Myself

Art by Regina Holliday

Art by Regina Holliday

“I started gathering my data two years ago and virtually no health care providers is ready to provide me my health data in a common standard…[Patients] are basically fighting a battle on multiple fronts. I experience providers who [don’t] have confidence in patients to [use] the data to improve their health.

There are also HIPAA concerns and the fear of “losing” a patient by providing the health data. There is not one single case providers will volunteer to offer me my data until I asked…I want to…turn my health data [into] actionable information to drive the planning of my daily activities so I can [continue] a healthy lifestyle…

It makes sense to me as a patient to have my data and use it to empower myself to know my body through the data. But the response is [often] concerns [with] liability and tampering [with] the data/information if the health record is managed by an individual.”
—Bon S.

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